We got our first snow Saturday night.... nothing compared to southern Minnesota but we have snow none the less...... it gives the woods a whole new look and feeling.... a feeling of calm, tranquility, peace..........
We are in need of quiet, down time.... Tom had a melt down from the disruption in his "boring" life....... our dear neighbor was here when he blew his top..... I'm glad for that as he was able to take the edge off as I was the target....... his Dad died from the disease..... he handled the situation well...... Thanks Dick!
It's hard for someone who doesn't live daily with this disease to understand... stimulation is bad...... (for TOM) every single person with this disease is DIFFERENT.
Tom makes comments about others who seem to give up on life... "boy if I were so & so I'd make myself get up and at least go for a walk or something"....... He still makes those comments NOT seeing himself the same as the one's he talks about.
It's sad but it is what it is... it's NOT going to go away, it is going to progress, it is a fatal disease, it is a slow disease, there are meds to EASE the way.....
BUT until they find what causes it and or find a cure...... your choices are few.....
It's not JUST about Tom but me too..... if I don't stay healthy mentally and physically Tom is in deep shit...... I am his voice..... I am his caregiver, I am the rest of his life......
I am so grateful to all the well meaning people who love Tom.... and me. I've let go of what I have learned is BEST FOR TOM and let others do their well meaning things for him......
Teddy has been a trooper in getting him out and about, into restaurants for breakfast and lunches, out bird hunting and deer hunting, riding the roads they traveled in their growing up years.......
Sister Susie finally got him (us) over for a home cooked meal...... and now brother Teddy wants to take us out for super tonight.....while sister Peggy wants to cry on his shoulder ........
OH I'm not exempt..... I was going to have brother Teddy entertain Tom so I could go see my Mom for a day..... I changed my mind when I seen what was happening to him.
Tom begged me........ MOM......please..... I've had enough.
❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥Someone Asked Why?❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥
Super women took a nose dive into the ground. She hit with such force she was buried for weeks. A heavy equipment operator was called in by God. He dug till he found her. She was still breathing but emotionally frail.
He took one look at her and he felt something he has never felt before. So when God said take care of her and love her......he did. He tried to walk away but couldn't....God filled him with an abundance of all the qualities he already possessed and said use these now to help her grow to her full potential as one day you will need what she has to give......
So he put her on a pedestal and kept her dusted and polished for years. Everyday he would polish and shine her and gave her everything he had inside as God instructed.
As the years slowly passed........and she shined like the brightest star in the sky......(He did an awesome job).....but now he was slowly losing himself.
She asked God with tears in her eyes " where is he going?" God said "he is going back to where he first came. It's a long hard journey and he needs you to help him get there safely."
I will give you an abundance of all you need to help him on his journey back to me, for that is where he came from.
So to those who ask why? Because I believe in fairy tales...He is my knight in shining armor...... He literally guarded me with his life.....
❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥
Super women took a nose dive into the ground. She hit with such force she was buried for weeks. A heavy equipment operator was called in by God. He dug till he found her. She was still breathing but emotionally frail.
He took one look at her and he felt something he has never felt before. So when God said take care of her and love her......he did. He tried to walk away but couldn't....God filled him with an abundance of all the qualities he already possessed and said use these now to help her grow to her full potential as one day you will need what she has to give......
So he put her on a pedestal and kept her dusted and polished for years. Everyday he would polish and shine her and gave her everything he had inside as God instructed.
As the years slowly passed........and she shined like the brightest star in the sky......(He did an awesome job).....but now he was slowly losing himself.
She asked God with tears in her eyes " where is he going?" God said "he is going back to where he first came. It's a long hard journey and he needs you to help him get there safely."
I will give you an abundance of all you need to help him on his journey back to me, for that is where he came from.
So to those who ask why? Because I believe in fairy tales...He is my knight in shining armor...... He literally guarded me with his life.....
❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥
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