We had such a peaceful Christmas.... it was a wonderful day for us all. All of Our Family found a way to touch us in a personal way without disrupting the calm that had recently enveloped us......
Nothing lasts forever... this disease is ever changing - ever challenging....
No one person is the same as another.. the disease is as unique in everyone as people themselves are all unique.
"Just for fun?"......... Tom started to talk in his sleep.... clearly... articulate... then he added hand movements ... that wasn't entertaining enough so he started walking around acting out these dreams.....
It was a little frustrating for me when he would call the girls by name and ask them if they wanted to "go outside?" OR "are you hungry...do you want something to eat?....
The girls were getting confused by his talking ALL night and his behavior so they started sticking pretty close to me.... I was so pinned in the bed I felt like a mummy... I could not move even a toe and they were not about to move away no matter how much I squirmed.
Yes, we were seriously worried about him going outside and not waking up....... He would wake and ask if he was dreaming or was it real... sometimes he argued about them being real ...... most times I could say... "Tom your dreaming" ... and he would either answer.... "OH" or "no I'm not".... AND sometimes I had to ask HIM if he was dreaming or awake when he was talking to me.... lol
Our lack of sleep was draining us both..... we both could laugh about it at times but also realized the seriousness of it.
I contacted his Doctor and he thinks it might be medication related, so we are adjusting them to see if that makes a difference.
He is having less episodes now and we are all getting some sleep....
With this disease you really don't know from day to day or moment to moment what can pop out from left field.... and there is no one clear answer... it's all a guessing game and trial & error.
❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥Someone Asked Why?❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥
Super women took a nose dive into the ground. She hit with such force she was buried for weeks. A heavy equipment operator was called in by God. He dug till he found her. She was still breathing but emotionally frail.
He took one look at her and he felt something he has never felt before. So when God said take care of her and love her......he did. He tried to walk away but couldn't....God filled him with an abundance of all the qualities he already possessed and said use these now to help her grow to her full potential as one day you will need what she has to give......
So he put her on a pedestal and kept her dusted and polished for years. Everyday he would polish and shine her and gave her everything he had inside as God instructed.
As the years slowly passed........and she shined like the brightest star in the sky......(He did an awesome job).....but now he was slowly losing himself.
She asked God with tears in her eyes " where is he going?" God said "he is going back to where he first came. It's a long hard journey and he needs you to help him get there safely."
I will give you an abundance of all you need to help him on his journey back to me, for that is where he came from.
So to those who ask why? Because I believe in fairy tales...He is my knight in shining armor...... He literally guarded me with his life.....
❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥
Super women took a nose dive into the ground. She hit with such force she was buried for weeks. A heavy equipment operator was called in by God. He dug till he found her. She was still breathing but emotionally frail.
He took one look at her and he felt something he has never felt before. So when God said take care of her and love her......he did. He tried to walk away but couldn't....God filled him with an abundance of all the qualities he already possessed and said use these now to help her grow to her full potential as one day you will need what she has to give......
So he put her on a pedestal and kept her dusted and polished for years. Everyday he would polish and shine her and gave her everything he had inside as God instructed.
As the years slowly passed........and she shined like the brightest star in the sky......(He did an awesome job).....but now he was slowly losing himself.
She asked God with tears in her eyes " where is he going?" God said "he is going back to where he first came. It's a long hard journey and he needs you to help him get there safely."
I will give you an abundance of all you need to help him on his journey back to me, for that is where he came from.
So to those who ask why? Because I believe in fairy tales...He is my knight in shining armor...... He literally guarded me with his life.....
❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥❥
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